NORD and the Galactosemia Foundation Jointly Publish First “Voice of the Patient” Report to Help Inform the FDA and Researchers - National Organization for Rare Disorders
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Last updated 01 abril 2025


NORD and the Galactosemia Foundation Jointly Publish First “Voice
Galactosemia Foundation

Advocating for Rare Disease Patients at the NIH - National

NORD Issues Statement on NIH Appointment of New Director for

NORDpod - National Organization for Rare Disorders
GLOW for Galactosemia Race & Family Event
CABRI Ann Arbor MI
GLOW for Galactosemia

Writing the Book on Your Child's Rare Disease: Raymond's Story in

Save On Quality, Vetted PPE with NORD and Project N95 - National
Galactosemia Foundation

New England Revolution on X: Wishing our very own Richie Williams
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